27th OF JUNE 2019 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENA ARTICLES.
After reflecting on Pathological Demand Avoidance ethics and re-evaluating the evidence to consider if DAP should be excluded from the autism spectrum, I now refer to it as Demand Avoidance Phenomena (DAP). These are for various factors, that I go into here and this talk does have recordings:
I am attempting to use DAP where possible in all my current work. Unfortunately it is not always possible for me to use DAP due to editorial preference.
This entry, repeats wider information published previously. There have been 9 new articles published and an old article from 2011 being added. The latter is Wing, Gould and Gillberg (2011), as it mentions DAP, discusses how it is almost impossible to subtype autism and the authors argue it is better to take a detailed developmental history over assigning autism subtypes. The 9 new articles include: 3 new book reviews; an article with a DAPer perspective; a commentary article; 2 new research papers and other relevant scholarship.
*Update*. I have added 2 more entries I forgot to include in the previous post. These are an article saying DAP can be explained by interaction between autism and ADHD. The second addition is a book chapter by Ruth Fidler. This chapter is little more than propaganda, I may do a chapter review one day.
Updated List of DAP Articles.
|DAP ARTICLES TIMELINE BY YEAR.|
|NUMBER.||YEAR||AUTHOR||TITLE: CAN BE SHORTENED.||JOURNAL.|
|1||2003||Newson et al.||Pathological demand avoidance syndrome: a necessary distinction within the PDD.||Archives of Disease in Childhood.|
|2||2003||Garralda.||Pathological demand avoidance syndrome or psychiatric disorder?||Archives of Disease in Childhood.|
|3||2005||Jones.||Developing independence through the use of a colour-coded system with PDA.||Good Autism Practice.|
|4||2007||Christie.||Pathological Demand Avoidance Syndrome: Guidelines for Good Practice||Good Autism Practice.|
|5||2011||Gould & Ashton-Smith.||Missed diagnnosis or misdiagnosis? Girls and women on the autism spectrum.||Good Autism Practice.|
|6||2011||Carlile.||Helping your child with PDA to play: eight strategies for PDA.||Good Autism Practice.|
|7||2011||Wing, Gould & Gillberg.||ASD in the DSM-V: Better or worse than the DSM-IV?||Research in Dev Disabilities|
|8||2012||Harvey||The Educational Issues for the child with a diagnosis of Pathological Demand Avoidance||Good Autism Practice.|
|9||2012||Eaton & Banting.||Adult diagnosis of pathological demand avoidance – subsequent care planning||Learning Disabilities Offending|
|10||2013||Milton.||‘Natures answer to over-conformity’: deconstructing PDA. Book chapter in 2017.||Autism Experts.|
|11||2013||Sinson.||Understanding pathological demand avoidance in children: book review.||Educational Psychology in Practice|
|12||2013||Grahame.||Understanding pathological demand avoidance in children: book review.||Child Adolescent Ment Health|
|13||2014||Saunders.||Understanding pathological demand avoidance in children: book review.||Int Journal of Primary Ed|
|14||2014||O’Nions et al.||Development of the EDA-Q for PDA traits measurement.||Child Psychology and Psychiatry.|
|15||2014||O’Nions et al.||Pathological demand avoidance: Exploring the behavioural profile.||Autism.|
|16||2014||Gillberg.||Public display of affection or pathological demand avoidance?||Child Psychology and Psychiatry.|
|17||2015||Gillberg et al.||PDA: a general population study in the Faroe Islands||Eur Child Adolescent Psychiatry.|
|18||2015||Reilly et al.||PDA in a population cohort of children with epilepsy: Four case studies.||Research in Dev Disabilities.|
|19||2016||O’Nions et al.||Identifying PDA using the DISCO.||Eur Child Adolescent Psychiatry.|
|20||2016||Langton & Frederickson||Mapping the educational experiences of children with PDA.||Journal of Research of SEN.|
|21||2016||Davis||Can I tell you about PDA: book review.||Good Autism Practice.|
|22||2016||Langton and Frederickson||Parents’ experiences of professionals’ involvement for children with PDA.||International Journal Dev Dis.|
|23||2017||Trundle et al.||Differentiating between PDA and antisocial personality disorder: a case study.||Learning Disabilities Offending|
|24||2017||Woods.||PDA: my thoughts on looping effects and commodification of autism.||Disability and Society.|
|25||2017||O’Nions, Happe and Viding.||Extreme/’pathological’ demand avoidance.||BPS DECP Debate 160.|
|26||2017||Brede et al.||Excluded from school: Autistic students exclusion and re-integration experiences.||Autism & Dev Language Impairments.|
|27||2017||Flackhill et al.||Coventry Grid Interview: Exploring autism and attachment difficulties.||Good Autism Practice.|
|28||2018||O’Nions et al.||PDA: Dimensions of difficulty in children with Autism + PDA Traits.||Child and Adol Mental Health|
|29||2018||Ogundele||Behavioural and emotional disorders: brief overview for paediatricians||World Journal Peadiatricians.|
|30||2018||Philip & Contejean.||The syndrome of pathological avoidance of requests: translated into English.||Neuropsych Child & Adolescent|
|31||2018||Green et al.||Pathological Demand Avoidance: symptoms but not a syndrome||Lancet Child & Adol Health|
|32||2018||Russell.||Being Misunderstood: Experiences of PDA Profile of ASD.||Self Published: The PDA Society.|
|33||2018||O’Nions et al.||Demand avoidance is not necessarily defiance.||Lancet Child & Adol Health|
|34||2018||Green et al.||Demand avoidance is not necessarily defiance – Author’s reply.||Lancet Child & Adol Health|
|35||2018||Egan, Lineberg & O’Nions||The Measurement of Adult Pathological Demand Avoidance Traits||Journal Autism & Devel Disorders|
|36||2018||Malik & Baird.||PDA – what’s in a name? Dimensions of difficulty,ASD and features of EDA/ PDA.||Child and Adol Mental Health|
|37||2018||Woods.||Pathological Demand Avoidance (PDA): Book Chapter.||Encyclopedia of ASDs.|
|38||2018||O’Nions & Neons.||Conceptualising demand avoidance in an ASD context – Author’s response.||Child and Adol Mental Health|
|39||2018||Woods.||PDA by PDAers, from anxiety to avoidance and masking to meltdowns: Book Review.||Disability & Society.|
|40||2018||PDA Action.||Failed by the System: EDA/ PDA in adults.||Self Published: PDA Action.|
|41||2018||Eaton et al 2018.||Modification of the Coventry Grid Interview to include PDA.||Good Autism Practice.|
|42||2018||Summerhill & Collett||Multi-agency assessment pathway for children and young people thought to have a PDA.||Good Autism Practice.|
|43||2018||Lyle & Leatherland||Preventing school exclusion: a case study of an autistic child with ADHD and a PDA profile.||Good Autism Practice.|
|44||2018||Woods.||A guide to mental health issues in girls and young women on the autism spectrum: Book Review.||Good Autism Practice.|
|45||2018||Linton et al 2018.||Retinal burns from laser pointers: a risk in children with behavioural problems.||Eye.|
|46||2019||Slaughter et al.||Criminal Behavior and School Discipline in Juvenile Justice-Involved Youth with Autism||Journal Autism & Devel Disorders|
|47||2019||Fidler||Girls who ‘can’t help won’t’: understanding the distinctive PDA profile & support approaches. Book chapter.||Girls and Autism book.|
|48||2019||Falk.||Non-complicit: Revisiting Hans Asperger’s Career in Nazi-era Vienna||Journal Autism & Devel Disorders|
|49||2019||Stuart et al||Intolerance of uncertainty and anxiety for extreme demand avoidance.||Child & Adolescent Mental Health|
|50||2019||Finley.||Supporting Students with Autism and PDA: A Personal Perspective from a 14 Year Old Student.||Good Autism Practice.|
|51||2019||Bradley||A guide to mental health issues in girls and young women on the autism spectrum: Book Review.||Good Autism Practice.|
|52||2019||Woods.||Me and My PDA: A guide to PDA for young people: Book Review.||Good Autism Practice.|
|53||2019||Woods.||PDA Paradox: Highs and Lows of a little known part of the Spectrum: Book Review.||Good Autism Practice.|
|54||2019||Orn, Locke & Locke.||PDA: A Transactional Behavior Analytic Model Without Pathology In Norwegian.||Norsk Tidsskrift for Atferdsanalyse|
|55||2019||Woods.||PDA: Is it time to develop more inclusive pedagogies?||Autonomy, Critical Autism Journal.|
*The articles that have autistic authors are marked by using bold and italics.
Journals where DAPers can publish their own articles.
In order for DAPers to have their work published they must meet the aims & scopes of the journal, along with their work being to academic standard. The list of journals which provide spaces for autistic persons to get their voice into the academic literature are:
- Autism Policy and Practice, Letters to the Editors section. Please see the link below for more details.
- Autonomy, the Critical Journal of Interdisciplinary Autism Studies. Please see the link below for more details.
- Canadian Journal of Disability Studies. Please see the link below for more details:
- Disability and Society, Current Issues section. Please see the link below for more details.
- Good Autism Practice, please see the link below for more details.
General advise when writing an article and choosing an appropriate journal, is to be aware of the audience each journal has and the politics of the journal. Good Autism Practice appears to be an important outlet for DAP literature, which is reflected in it publishing 29.1% of DAP articles and readers are explicitly recommended to read it the key DAP text book (Christie et al 2012). This could be due to Good Autism Practice target audience being clinicians and parents; that are 2 stakeholder groups pushing the growth in DAP (Christie 2007; Christie et al 2012). Picking a suitable journal for your work is crucial step in the process of getting an article published, however it is hard work and the feedback that you will receive may appear harsh. Most reviewers’ feedback is there to improve the article, so it is worth acting on it where possible. Contrastingly, sometimes reviewers will reject an article because it goes against their views or agenda, which is why picking an appropriate journal is pivotal to getting an article published. I look forward to reading future DAPer authored articles.
Plans for future blog posts.
I have a few blog posts lined for the next coming months; such as further updates to the list the of published articles, in particular I have been informed to expect my article Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? Is shortly to be published in Autonomy, the Critical Journal of Interdisciplinary Autism Studies. I plan a future blog post exploring how parts of the DAP community are acting like cult.
Latest DAP Research.
I have delivered 2 talks on Demand Avoidance Phenomena at recent Critical Disability Studies events:
- An Updated Interest Based Account (Monotropism theory) & a Demand Avoidance Phenomenon discussion.
- Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy.
Two of these talks supplement the DAP deconstruction Critical Reflections on the Pathological Demand Avoidance debate: A response to The Practice MK blog and discussion, which can be accessed here:
Besides book reviews, I have 2 new articles published in the journal, Autonomy, the Critical Journal of Interdisciplinary Autism Studies. The first is a PDA one that was submitted 2 years ago. The second is co-authored with Dr Mitzi Waltz and was written last summer. These are:
- Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices?
- The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton.
Autism Policy and Practice Autistic-led good practice journal.
Here is a link to an open access good practice journal that I and others are restarting:
Journal’s editors are presently working hard for an August/ September publishing of the first edition.