01st OF FEBRUARY 2020 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENA ARTICLES.
*Update.* I have published an updated list, which can be found here:
Introduction.
It has been a while since I updated the list of PDA literature, so this is a quick blog post to provide relevant literature. There are 8 new editions. I provide links to them in the references at the end. I also include details to participate in research by Grace Trundle.
Updated List of DAP Articles.
| DAP ARTICLES TIMELINE BY YEAR. | ||||
| NUMBER. | YEAR | AUTHOR | TITLE: CAN BE SHORTENED. | JOURNAL. |
| 1 | 2003 | Newson et al. | Pathological demand avoidance syndrome: a necessary distinction within the PDD. | Archives of Disease in Childhood. |
| 2 | 2003 | Garralda. | Pathological demand avoidance syndrome or psychiatric disorder? | Archives of Disease in Childhood. |
| 3 | 2005 | Jones. | Developing independence through the use of a colour-coded system with PDA. | Good Autism Practice. |
| 4 | 2007 | Christie. | Pathological Demand Avoidance Syndrome: Guidelines for Good Practice | Good Autism Practice. |
| 5 | 2011 | Gould & Ashton-Smith. | Missed diagnnosis or misdiagnosis? Girls and women on the autism spectrum. | Good Autism Practice. |
| 6 | 2011 | Carlile. | Helping your child with PDA to play: eight strategies for PDA. | Good Autism Practice. |
| 7 | 2011 | Wing, Gould & Gillberg. | ASD in the DSM-V: Better or worse than the DSM-IV? | Research in Dev Disabilities |
| 8 | 2012 | Harvey | The Educational Issues for the child with a diagnosis of Pathological Demand Avoidance | Good Autism Practice. |
| 9 | 2012 | Eaton & Banting. | Adult diagnosis of pathological demand avoidance – subsequent care planning | Learning Disabilities Offending |
| 10 | 2013 | Milton. | ‘Natures answer to over-conformity’: deconstructing PDA. Book chapter in 2017. | Autism Experts. |
| 11 | 2013 | Sinson. | Understanding pathological demand avoidance in children: book review. | Educational Psychology in Practice |
| 12 | 2013 | Grahame. | Understanding pathological demand avoidance in children: book review. | Child Adolescent Ment Health |
| 13 | 2014 | Saunders. | Understanding pathological demand avoidance in children: book review. | Int Journal of Primary Ed |
| 14 | 2014 | O’Nions et al. | Development of the EDA-Q for PDA traits measurement. | Child Psychology and Psychiatry. |
| 15 | 2014 | O’Nions et al. | Pathological demand avoidance: Exploring the behavioural profile. | Autism. |
| 16 | 2014 | Gillberg. | Public display of affection or pathological demand avoidance? | Child Psychology and Psychiatry. |
| 17 | 2015 | Gillberg et al. | PDA: a general population study in the Faroe Islands | Eur Child Adolescent Psychiatry. |
| 18 | 2015 | Reilly et al. | PDA in a population cohort of children with epilepsy: Four case studies. | Research in Dev Disabilities. |
| 19 | 2016 | O’Nions et al. | Identifying PDA using the DISCO. | Eur Child Adolescent Psychiatry. |
| 20 | 2016 | Langton & Frederickson | Mapping the educational experiences of children with PDA. | Journal of Research of SEN. |
| 21 | 2016 | Davis | Can I tell you about PDA: book review. | Good Autism Practice. |
| 22 | 2016 | Langton and Frederickson | Parents’ experiences of professionals’ involvement for children with PDA. | International Journal Dev Dis. |
| 23 | 2017 | Trundle et al. | Differentiating between PDA and antisocial personality disorder: a case study. | Learning Disabilities Offending |
| 24 | 2017 | Woods. | PDA: my thoughts on looping effects and commodification of autism. | Disability and Society. |
| 25 | 2017 | O’Nions, Happe and Viding. | Extreme/’pathological’ demand avoidance. | BPS DECP Debate 160. |
| 26 | 2017 | Brede et al. | Excluded from school: Autistic students exclusion and re-integration experiences. | Autism & Dev Language Impairments. |
| 27 | 2017 | Flackhill et al. | Coventry Grid Interview: Exploring autism and attachment difficulties. | Good Autism Practice. |
| 28 | 2018 | O’Nions et al. | PDA: Dimensions of difficulty in children with Autism + PDA Traits. | Child and Adol Mental Health |
| 29 | 2018 | Ogundele | Behavioural and emotional disorders: brief overview for paediatricians | World Journal Peadiatricians. |
| 30 | 2018 | Philip & Contejean. | The syndrome of pathological avoidance of requests: translated into English. | Neuropsych Child & Adolescent |
| 31 | 2018 | Green et al. | Pathological Demand Avoidance: symptoms but not a syndrome | Lancet Child & Adol Health |
| 32 | 2018 | Russell. | Being Misunderstood: Experiences of PDA Profile of ASD. | Self Published: The PDA Society. |
| 33 | 2018 | O’Nions et al. | Demand avoidance is not necessarily defiance. | Lancet Child & Adol Health |
| 34 | 2018 | Green et al. | Demand avoidance is not necessarily defiance – Author’s reply. | Lancet Child & Adol Health |
| 35 | 2018 | Egan, Lineberg & O’Nions | The Measurement of Adult Pathological Demand Avoidance Traits | Journal Autism & Devel Disorders |
| 36 | 2018 | Malik & Baird. | PDA – what’s in a name? Dimensions of difficulty,ASD and features of EDA/ PDA. | Child and Adol Mental Health |
| 37 | 2018 | Woods. | Pathological Demand Avoidance (PDA): Book Chapter. | Encyclopedia of ASDs. |
| 38 | 2018 | O’Nions & Neons. | Conceptualising demand avoidance in an ASD context – Author’s response. | Child and Adol Mental Health |
| 39 | 2018 | Woods. | PDA by PDAers, from anxiety to avoidance and masking to meltdowns: Book Review. | Disability & Society. |
| 40 | 2018 | PDA Action. | Failed by the System: EDA/ PDA in adults. | Self Published: PDA Action. |
| 41 | 2018 | Eaton et al 2018. | Modification of the Coventry Grid Interview to include PDA. | Good Autism Practice. |
| 42 | 2018 | Summerhill & Collett | Multi-agency assessment pathway for children and young people thought to have a PDA. | Good Autism Practice. |
| 43 | 2018 | Lyle & Leatherland | Preventing school exclusion: a case study of an autistic child with ADHD and a PDA profile. | Good Autism Practice. |
| 44 | 2018 | Woods. | A guide to mental health issues in girls and young women on the autism spectrum: Book Review. | Good Autism Practice. |
| 45 | 2018 | Linton et al 2018. | Retinal burns from laser pointers: a risk in children with behavioural problems. | Eye. |
| 46 | 2019 | Slaughter et al. | Criminal Behavior and School Discipline in Juvenile Justice-Involved Youth with Autism | Journal Autism & Devel Disorders |
| 47 | 2019 | Fidler | Girls who ‘can’t help won’t’: understanding the distinctive PDA profile & support approaches. Book chapter. | Girls and Autism book. |
| 48 | 2019 | Falk. | Non-complicit: Revisiting Hans Asperger’s Career in Nazi-era Vienna | Journal Autism & Devel Disorders |
| 49 | 2019 | Stuart et al | Intolerance of uncertainty and anxiety for extreme demand avoidance. | Child & Adolescent Mental Health |
| 50 | 2019 | Finley. | Supporting Students with Autism and PDA: A Personal Perspective from a 14 Year Old Student. | Good Autism Practice. |
| 51 | 2019 | Bradley | A guide to mental health issues in girls and young women on the autism spectrum: Book Review. | Good Autism Practice. |
| 52 | 2019 | Woods. | Me and My PDA: A guide to PDA for young people: Book Review. | Good Autism Practice. |
| 53 | 2019 | Woods. | PDA Paradox: Highs and Lows of a little known part of the Spectrum: Book Review. | Good Autism Practice. |
| 54 | 2019 | Orn, Locke & Locke. | PDA: A Transactional Behavior Analytic Model Without Pathology In Norwegian. | Norsk Tidsskrift for Atferdsanalyse |
| 55 | 2019 | Woods. | PDA: Is it time to develop more inclusive pedagogies? | Autonomy, Critical Autism Journal. |
| 56 | 2019 | O’Nions. | Child behaviour and parenting strategies – a research update. | Self-Published Blog. |
| 57 | 2019 | Woods | Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. | Good Autism Practice. |
| 58 | 2019 | Woods et al. | Empathy and a Personalised Approach in Autism. | Journal Autism & Devel Disorders. |
| 59 | 2019 | Peterson et al. | Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions. | Journal of Child & Adolescent Trauma. |
| 60 | 2020 | Woods. | Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2019) | Child & Adolescent Mental Health. |
| 61 | 2020 | Eaton. | A Response to Wood’s paper – Demand Avoidance Phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. | Good Autism Practice. |
| 62 | 2020 | O’Nions et al. | Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour. | Journal Autism & Devel Disorders. |
| 63 | In Press. | Moore. | Pathological Demand Avoidance: What and Who are being pathologized and in whose interests? | Global Studies of Childhood. |
*The articles that have autistic authors are marked by using bold and italics.
Journals where DAPers can publish their own articles.
In order for DAPers to have their work published they must meet the aims & scopes of the journal, along with their work being to academic standard. The list of journals which provide spaces for autistic persons to get their voice into the academic literature are:
- Autism Policy and Practice, Letters to the Editors section. Please see the link below for more details.
https://www.openaccessautism.org/index.php/app/about/submissions#authorGuidelines - Autonomy, the Critical Journal of Interdisciplinary Autism Studies. Please see the link below for more details.
http://www.larry-arnold.net/Autonomy/index.php/autonomy/about/editorialPolicies#focusAndScope
- Canadian Journal of Disability Studies. Please see the link below for more details:
https://cjds.uwaterloo.ca/index.php/cjds/about/submissions - Disability and Society, Current Issues section. Please see the link below for more details.
https://www.tandfonline.com/action/authorSubmission?show=instructions&journalCode=cdso20 - Good Autism Practice, please see the link below for more details.
http://www.bild.org.uk/our-services/journals/gap/
General advise when writing an article and choosing an appropriate journal, is to be aware of the audience each journal has and the politics of the journal. Good Autism Practice appears to be an important outlet for DAP literature, which is reflected in it publishing 27.0% of DAP articles and readers are explicitly recommended to read it the key DAP text book (Christie et al 2012). This could be due to Good Autism Practice target audience being clinicians and parents; that are 2 stakeholder groups pushing the growth in DAP (Christie 2007; Christie et al 2012). Picking a suitable journal for your work is crucial step in the process of getting an article published, however it is hard work and the feedback that you will receive may appear harsh. Most reviewers’ feedback is there to improve the article, so it is worth acting on it where possible. Contrastingly, sometimes reviewers will reject an article because it goes against their views or agenda, which is why picking an appropriate journal is pivotal to getting an article published. I look forward to reading future DAPer authored articles.
My latest research.
I have recently had a commentary article published in Good Autism Practice:
– Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference.
Additionally, I and others have had a short essay published in Journal of Autism and Developmental Disorders:
– Empathy and a Personalised Approach in Autism.
https://doi.org/10.1007/s10803-019-04287-4
A book chapter describing what the sub-discipline Critical Autism Studies is, I lead authored it and it can be found here:
https://link.springer.com/referenceworkentry/10.1007%2F978-1-4614-6435-8_102297-1
Autism Policy and Practice.
The autistic-led good practice journal, Autism Policy and Practice has published its first edition under the current editor team. This can be accessed via the link below:
https://www.openaccessautism.org/index.php/app/issue/view/4
Grace Trundle’s DAP research.
As part of a postgraduate course at the University of Nottingham, a research study into social skills is being conducted! The purpose of the study is to investigate social processes in risky behaviour.
The results of the study will help clinical researchers better understand social and personal skills associated with offending and victimisation.
The study involves several questionnaires looking at behaviour, experiences, and characteristics, which will take around 30 minutes to complete. If you would like to take part in the study, you will be provided with all the study information and asked to sign a consent form allowing the researchers to access and use your anonymous data. Taking part in the study is voluntary, and you can change your mind at any point during the study. No personal information will be collected. Your responses to the questionnaires will be anonymous and only the researcher and supervisor will have access to the data provided.
If you are interested in taking part in the study, please click the link: tinyurl.com/gtstudy19
If you have any questions, please contact any of the following:
Grace Trundle (grace.trundle@nottingham.ac.uk)
Dr Vincent Egan (Vincent.egan@nottingham)
References.
Eaton, J. (2020). A Response to Wood’s paper – Demand Avoidance Phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice, 20(2), 40a-40f. https://www.ingentaconnect.com/contentone/bild/gap/2019/00000020/00000002/art00005
Moore, A. (in press). Pathological demand avoidance: What and who are being pathologized and in whose interests? Global Studies of Childhood. In Press. https://research.edgehill.ac.uk/en/publications/pathological-demand-avoidance-what-and-who-are-being-pathologized
O’Nions, E. (2019). Child behaviour and parenting strategies – a research update (Online document). Retrieved from: https://lizonions.files.wordpress.com/2019/09/1909childbehaviourparentingstrategiessummary.pdf (Accessed 01 February 2020).
O’Nions, E., Ceulemans, E., Happé, F., Benson, P., Evers, K., & Neons, I. (2020). Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour. Journal of Autism and Developmental Disorders, 50(2), 386-401. https://link.springer.com/article/10.1007/s10803-019-04219-2
Peterson, J., Earl, R., Fox, E., Ma, R., Haidar, G., Pepper, M.,…Bernier, R. (2019). Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions. Journal of Child & Adolescent Trauma, 12(4), 529-547. https://link.springer.com/article/10.1007/s40653-019-00253-5
Woods, R. (2019). Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice, 20(2), 28-40. https://www.ingentaconnect.com/contentone/bild/gap/2019/00000020/00000002/art00004
Woods, R. (2020). Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2019). Child and Adolescent Mental Health. DOI: https://doi.org/10.1111/camh.12368
Woods, R., Waldock, K., Keates, N., & Morgan, H. (2019). Empathy and a Personalised Approach in Autism. Journal of Autism and Developmental Disorders. DOI: https://link.springer.com/article/10.1007/s10803-019-04287-4
Rational Demand Avoidance 