01st OF FEBRUARY 2020 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENA ARTICLES.

01st OF FEBRUARY 2020 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENA ARTICLES.

 

*Update.* I have published an updated list, which can be found here:

https://rationaldemandavoidance.com/2020/02/13/13th-of-february-2020-update-to-the-list-of-demand-avoidance-phenomena-articles/

 

Introduction.

It has been a while since I updated the list of PDA literature, so this is a quick blog post to provide relevant literature. There are 8 new editions. I provide links to them in the references at the end. I also include details to participate in research by Grace Trundle.

 

Updated List of DAP Articles.

DAP ARTICLES TIMELINE BY YEAR.
NUMBER. YEAR AUTHOR TITLE: CAN BE SHORTENED. JOURNAL.
1 2003 Newson et al. Pathological demand avoidance syndrome: a necessary distinction within the PDD. Archives of Disease in Childhood.
2 2003 Garralda. Pathological demand avoidance syndrome or psychiatric disorder? Archives of Disease in Childhood.
3 2005 Jones. Developing independence through the use of a colour-coded system with PDA. Good Autism Practice.
4 2007 Christie. Pathological Demand Avoidance Syndrome: Guidelines for Good Practice Good Autism Practice.
5 2011 Gould & Ashton-Smith. Missed diagnnosis or misdiagnosis? Girls and women on the autism spectrum. Good Autism Practice.
6 2011 Carlile. Helping your child with PDA to play: eight strategies for PDA. Good Autism Practice.
7 2011 Wing, Gould & Gillberg. ASD in the DSM-V: Better or worse than the DSM-IV? Research in Dev Disabilities
8 2012 Harvey The Educational Issues for the child with a diagnosis of Pathological Demand Avoidance Good Autism Practice.
9 2012 Eaton & Banting. Adult diagnosis of pathological demand avoidance – subsequent care planning Learning Disabilities Offending
10 2013 Milton. ‘Natures answer to over-conformity’: deconstructing PDA. Book chapter in 2017. Autism Experts.
11 2013 Sinson. Understanding pathological demand avoidance in children: book review. Educational Psychology in Practice
12 2013 Grahame. Understanding pathological demand avoidance in children: book review. Child Adolescent Ment Health
13 2014 Saunders. Understanding pathological demand avoidance in children: book review. Int Journal of Primary Ed
14 2014 O’Nions et al. Development of the EDA-Q for PDA traits measurement. Child Psychology and Psychiatry.
15 2014 O’Nions et al. Pathological demand avoidance: Exploring the behavioural profile. Autism.
16 2014 Gillberg. Public display of affection or pathological demand avoidance? Child Psychology and Psychiatry.
17 2015 Gillberg et al. PDA: a general population study in the Faroe Islands Eur Child Adolescent Psychiatry.
18 2015 Reilly et al. PDA in a population cohort of children with epilepsy: Four case studies. Research in Dev Disabilities.
19 2016 O’Nions et al. Identifying PDA using the DISCO. Eur Child Adolescent Psychiatry.
20 2016 Langton & Frederickson Mapping the educational experiences of children with PDA. Journal of Research of SEN.
21 2016 Davis Can I tell you about PDA: book review. Good Autism Practice.
22 2016 Langton and Frederickson Parents’ experiences of professionals’ involvement for children with PDA. International Journal Dev Dis.
23 2017 Trundle et al. Differentiating between PDA and antisocial personality disorder: a case study. Learning Disabilities Offending
24 2017 Woods. PDA: my thoughts on looping effects and commodification of autism. Disability and Society.
25 2017 O’Nions, Happe and Viding. Extreme/’pathological’ demand avoidance. BPS DECP Debate 160.
26 2017 Brede et al. Excluded from school: Autistic students exclusion and re-integration experiences. Autism & Dev Language Impairments.
27 2017 Flackhill et al. Coventry Grid Interview: Exploring autism and attachment difficulties. Good Autism Practice.
28 2018 O’Nions et al. PDA: Dimensions of difficulty in children with Autism + PDA Traits. Child and Adol Mental Health
29 2018 Ogundele Behavioural and emotional disorders:  brief overview for paediatricians World Journal Peadiatricians.
30 2018 Philip & Contejean. The syndrome of pathological avoidance of requests: translated into English. Neuropsych Child & Adolescent
31 2018 Green et al. Pathological Demand Avoidance: symptoms but not a syndrome Lancet Child & Adol Health
32 2018 Russell. Being Misunderstood: Experiences of PDA Profile of ASD. Self Published: The PDA Society.
33 2018 O’Nions et al. Demand avoidance is not necessarily defiance. Lancet Child & Adol Health
34 2018 Green et al. Demand avoidance is not necessarily defiance – Author’s reply. Lancet Child & Adol Health
35 2018 Egan, Lineberg & O’Nions The Measurement of Adult Pathological Demand Avoidance Traits Journal Autism & Devel Disorders
36 2018 Malik & Baird. PDA – what’s in a name? Dimensions of difficulty,ASD and features of EDA/ PDA. Child and Adol Mental Health
37 2018 Woods. Pathological Demand Avoidance (PDA): Book Chapter. Encyclopedia of ASDs.
38 2018 O’Nions & Neons. Conceptualising demand avoidance in an ASD context – Author’s response. Child and Adol Mental Health
39 2018 Woods. PDA by PDAers, from anxiety to avoidance and masking to meltdowns: Book Review. Disability & Society.
40 2018 PDA Action. Failed by the System: EDA/ PDA in adults. Self Published: PDA Action.
41 2018 Eaton et al 2018. Modification of the Coventry Grid Interview  to include PDA. Good Autism Practice.
42 2018 Summerhill & Collett Multi-agency assessment pathway for children and young people thought to have a PDA. Good Autism Practice.
43 2018 Lyle & Leatherland Preventing school exclusion: a case study of an  autistic child with ADHD and a PDA profile. Good Autism Practice.
44 2018 Woods. A guide to mental health issues in girls and young women on the autism spectrum: Book Review. Good Autism Practice.
45 2018 Linton et al 2018. Retinal burns from laser pointers: a risk in children with behavioural problems. Eye.
46 2019 Slaughter et al. Criminal Behavior and School Discipline in Juvenile Justice-Involved Youth with Autism Journal Autism & Devel Disorders
47 2019 Fidler Girls who ‘can’t help won’t’: understanding the distinctive PDA profile & support approaches. Book chapter. Girls and Autism book.
48 2019 Falk. Non-complicit: Revisiting Hans Asperger’s Career in Nazi-era Vienna Journal Autism & Devel Disorders
49 2019 Stuart et al Intolerance of uncertainty and anxiety for extreme demand avoidance. Child & Adolescent Mental Health
50 2019 Finley. Supporting Students with Autism and PDA: A Personal Perspective from a 14 Year Old Student. Good Autism Practice.
51 2019 Bradley A guide to mental health issues in girls and young women on the autism spectrum: Book Review. Good Autism Practice.
52 2019 Woods. Me and My PDA: A guide to PDA for young people: Book Review. Good Autism Practice.
53 2019 Woods. PDA Paradox: Highs and Lows of a little known part of the Spectrum: Book Review. Good Autism Practice.
54 2019 Orn, Locke & Locke. PDA: A Transactional Behavior Analytic Model Without Pathology In Norwegian. Norsk Tidsskrift for Atferdsanalyse
55 2019 Woods. PDA: Is it time to develop more inclusive pedagogies? Autonomy, Critical Autism Journal.
56 2019 O’Nions. Child behaviour and parenting strategies – a research update. Self-Published Blog.
57 2019 Woods Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice.
58 2019 Woods et al. Empathy and a Personalised Approach in Autism. Journal Autism & Devel Disorders.
59 2019 Peterson et al. Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions. Journal of Child & Adolescent Trauma.
60 2020 Woods. Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2019) Child & Adolescent Mental Health.
61 2020 Eaton. A Response to Wood’s paper – Demand Avoidance Phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice.
62 2020 O’Nions et al. Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour. Journal Autism & Devel Disorders.
63 In Press. Moore. Pathological Demand Avoidance: What and Who are being pathologized and in whose interests? Global Studies of Childhood.

 

*The articles that have autistic authors are marked by using bold and italics.

 

Journals where DAPers can publish their own articles.

In order for DAPers to have their work published they must meet the aims & scopes of the journal, along with their work being to academic standard. The list of journals which provide spaces for autistic persons to get their voice into the academic literature are:

http://www.larry-arnold.net/Autonomy/index.php/autonomy/about/editorialPolicies#focusAndScope

 

General advise when writing an article and choosing an appropriate journal, is to be aware of the audience each journal has and the politics of the journal. Good Autism Practice appears to be an important outlet for DAP literature, which is reflected in it publishing 27.0% of DAP articles and readers are explicitly recommended to read it the key DAP text book (Christie et al 2012). This could be due to Good Autism Practice target audience being clinicians and parents; that are 2 stakeholder groups pushing the growth in DAP (Christie 2007; Christie et al 2012). Picking a suitable journal for your work is crucial step in the process of getting an article published, however it is hard work and the feedback that you will receive may appear harsh. Most reviewers’ feedback is there to improve the article, so it is worth acting on it where possible. Contrastingly, sometimes reviewers will reject an article because it goes against their views or agenda, which is why picking an appropriate journal is pivotal to getting an article published. I look forward to reading future DAPer authored articles.

 

My latest research.

I have recently had a commentary article published in Good Autism Practice:

–           Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference.

https://www.researchgate.net/publication/337146735_Demand_avoidance_phenomena_circularity_integrity_and_validity_-a_commentary_on_the_2018_National_Autistic_Society_PDA_Conference

Additionally, I and others have had a short essay published in Journal of Autism and Developmental Disorders:

–           Empathy and a Personalised Approach in Autism.

https://doi.org/10.1007/s10803-019-04287-4

A book chapter describing what the sub-discipline Critical Autism Studies is, I lead authored it and it can be found here:

https://link.springer.com/referenceworkentry/10.1007%2F978-1-4614-6435-8_102297-1

 

Autism Policy and Practice.

The autistic-led good practice journal, Autism Policy and Practice has published its first edition under the current editor team. This can be accessed via the link below:

https://www.openaccessautism.org/index.php/app/issue/view/4

 

Grace Trundle’s DAP research.

As part of a postgraduate course at the University of Nottingham, a research study into social skills is being conducted! The purpose of the study is to investigate social processes in risky behaviour.

 

The results of the study will help clinical researchers better understand social and personal skills associated with offending and victimisation.

 

The study involves several questionnaires looking at behaviour, experiences, and characteristics, which will take around 30 minutes to complete. If you would like to take part in the study, you will be provided with all the study information and asked to sign a consent form allowing the researchers to access and use your anonymous data. Taking part in the study is voluntary, and you can change your mind at any point during the study. No personal information will be collected. Your responses to the questionnaires will be anonymous and only the researcher and supervisor will have access to the data provided.

 

If you are interested in taking part in the study, please click the link: tinyurl.com/gtstudy19

 

If you have any questions, please contact any of the following:

Grace Trundle (grace.trundle@nottingham.ac.uk)

 

Dr Vincent Egan (Vincent.egan@nottingham)

 

References.

Eaton, J. (2020). A Response to Wood’s paper – Demand Avoidance Phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice, 20(2), 40a-40f. https://www.ingentaconnect.com/contentone/bild/gap/2019/00000020/00000002/art00005

Moore, A. (in press). Pathological demand avoidance: What and who are being pathologized and in whose interests? Global Studies of Childhood. In Press. https://research.edgehill.ac.uk/en/publications/pathological-demand-avoidance-what-and-who-are-being-pathologized

O’Nions, E. (2019). Child behaviour and parenting strategies – a research update (Online document). Retrieved from: https://lizonions.files.wordpress.com/2019/09/1909childbehaviourparentingstrategiessummary.pdf (Accessed 01 February 2020).

O’Nions, E., Ceulemans, E., Happé, F., Benson, P., Evers, K., & Neons, I. (2020). Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour. Journal of Autism and Developmental Disorders, 50(2), 386-401. https://link.springer.com/article/10.1007/s10803-019-04219-2

Peterson, J., Earl, R., Fox, E., Ma, R., Haidar, G., Pepper, M.,…Bernier, R. (2019). Trauma and Autism Spectrum Disorder: Review, Proposed Treatment Adaptations and Future Directions. Journal of Child & Adolescent Trauma, 12(4), 529-547. https://link.springer.com/article/10.1007/s40653-019-00253-5

Woods, R. (2019). Demand avoidance phenomena: circularity, integrity and validity – a commentary on the 2018 National Autistic Society PDA Conference. Good Autism Practice, 20(2), 28-40. https://www.ingentaconnect.com/contentone/bild/gap/2019/00000020/00000002/art00004

Woods, R. (2020). Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2019). Child and Adolescent Mental Health. DOI: https://doi.org/10.1111/camh.12368

Woods, R., Waldock, K., Keates, N., & Morgan, H. (2019). Empathy and a Personalised Approach in Autism. Journal of Autism and Developmental Disorders. DOI: https://link.springer.com/article/10.1007/s10803-019-04287-4

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