31st AUGUST 2018 UPDATE TO THE LIST OF RDA ARTICLES.
Introduction.
This entry, repeats wider information published previously. There have been several articles to the published: 2 short letter articles responding to Green et al (2018). Ogundele (2018) is a review article and for the first time refers to RDA as Newson’s Syndrome. Importantly, the first major study investigating RDA in adults. Finally, I have included The Misunderstood report by the PDA Society, as it includes relevant data. I will update when there are more articles published.
Updated List of RDA Articles.
| RDA ARTICLES TIMELINE BY YEAR. | ||||
| NUMBER | YEAR | AUTHOR | TITLE: CAN BE SHORTENED. | JOURNAL. |
| 1 | 2003 | Newson et al. | Pathological demand avoidance syndrome: a necessary distinction within the PDD. | Archives of Disease in Childhood. |
| 2 | 2003 | Garralda. | Pathological demand avoidance syndrome or psychiatric disorder? | Archives of Disease in Childhood. |
| 3 | 2005 | Jones. | Developing independence through the use of a colour-coded system with PDA. | Good Autism Practice. |
| 4 | 2007 | Christie. | Pathological Demand Avoidance Syndrome: Guidelines for Good Practice | Good Autism Practice. |
| 5 | 2011 | Harvey | The Educational Issues for the child with a diagnosis of Pathological Demand Avoidance | Good Autism Practice. |
| 6 | 2011 | Gould & Ashton-Smith. | Missed diagnnosis or misdiagnosis? Girls and women on the autism spectrum. | Good Autism Practice. |
| 7 | 2012 | Carlile. | Helping your child with PDA to play: eight strategies for PDA. | Good Autism Practice. |
| 8 | 2012 | Eaton & Banting. | Adult diagnosis of pathological demand avoidance – subsequent care planning | Learning Disabilities Offending |
| 9 | 2013 | Milton. | ‘Natures answer to over-conformity’: deconstructing PDA. Book chapter in 2017.* | Autism Experts. |
| 10 | 2013 | Sinson. | Understanding pathological demand avoidance in children: book review. | Educational Psychology in Practice |
| 11 | 2013 | Grahame. | Understanding pathological demand avoidance in children: book review. | Child Adolescent Ment Health |
| 12 | 2014 | Saunders. | Understanding pathological demand avoidance in children: book review. | Int Journal of Primary Ed |
| 13 | 2014 | O’Nions et al. | Development of the EDA-Q for PDA traits measurement. | Child Psychology and Psychiatry. |
| 14 | 2014 | O’Nions et al. | Pathological demand avoidance: Exploring the behavioural profile. | Autism. |
| 15 | 2014 | Gillberg. | Public display of affection or pathological demand avoidance? | Child Psychology and Psychiatry. |
| 16 | 2015 | Gillberg et al. | PDA: a general population study in the Faroe Islands | Eur Child Adolesc Psychiatry. |
| 17 | 2015 | Reilly et al. | PDA in a population cohort of children with epilepsy: Four case studies. | Research in Dev Disabilities. |
| 18 | 2016 | O’Nions et al. | Identifying PDA using the DISCO. | Eur Child Adolesc Psychiatry. |
| 19 | 2016 | Langton & Frederickson | Mapping the educational experiences of children with PDA. | Journal of Research of SEN. |
| 20 | 2016 | Davis | Can I tell you about PDA: book review. | Good Autism Practice. |
| 21 | 2016 | Langton and Frederickson | Parents’ experiences of professionals’ involvement for children with PDA. | International Journal Dev Dis. |
| 22 | 2017 | Trundle et al. | Differentiating between PDA and antisocial personality disorder: a case study. | Learning Disabilities Offending |
| 23 | 2017 | Woods. | PDA: my thoughts on looping effects and commodification of autism.* | Disability and Society. |
| 24 | 2017 | O’Nions, Happe and Viding. | Extreme/’pathological’ demand avoidance. | BPS DECP Debate 160. |
| 25 | 2017 | Brede et al. | Excluded from school: Autistic students exclusion and re-integration experiences. | Autism & Dev Language Impairments. |
| 26 | 2017 | Flackhill et al. | Coventry Grid Interview: Exploring autism and attachment difficulties. | Good Autism Practice. |
| 27 | 2017 | O’Nions et al. | PDA: Dimensions of difficulty in children with Autism + PDA Traits. | Child and Adol Mental Health |
| 28 | 2018 | Ogundele | Behavioural and emotional disorders: brief overview for paediatricians | World Journal Peadiatricians. |
| 29 | 2018 | Philip & Contejean. | The syndrome of pathological avoidance of requests: translated into English. | Neuropsych Child & Adolescent |
| 30 | 2018 | Green et al. | Pathological Demand Avoidance: symptoms but not a syndrome | Lancet Child & Adol Health |
| 31 | 2018 | Russell. | Being Misunderstood: Experiences of PDA Profile of ASD. | Self Published: The PDA Society. |
| 32 | 2018 | O’Nions et al. | Demand avoidance is not necessarily defiance. | Lancet Child & Adol Health |
| 33 | 2018 | Green et al. | Demand avoidance is not necessarily defiance – Author’s reply. | Lancet Child & Adol Health |
*The articles that have autistic authors are marked by using bold and italics.
Journals where RDAers can publish their own articles.
In order for RDAers to have their work published they must meet the aims & scopes of the journal, along with their work being to academic standard. The list of journals which provide spaces for autistic persons to get their voice into the academic literature are:
- Autonomy, the Critical Journal of Interdisciplinary Autism Studies. Pease see the link below for more details.
http://www.larry-arnold.net/Autonomy/index.php/autonomy/about/editorialPolicies#focusAndScope
- Disability and Society, Current Issues section. Please see the link below for more details.
https://www.tandfonline.com/action/journalInformation?show=aimsScope&journalCode=cdso20 - Good Autism Practice, please see the link below for more details.
http://www.bild.org.uk/our-services/journals/gap/
General advise when writing an article and choosing an appropriate journal, is to be aware of the audience each journal has and the politics of the journal. Good Autism Practice appears to be a pro-RDA journal, which is reflected in it publishing 21% of RDA articles and readers are explicitly recommended to read it the key RDA text book (Christie et al 2012). This could be due to Good Autism Practice target audience being clinicians and parents; that are 2 stakeholder groups pushing the growth in RDA (Christie 2007; Christie et al 2012). Picking a suitable journal for your work is crucial step in the process of getting an article published, however it is hard work and the feedback that you will receive may appear harsh. Most reviewers’ feedback is there to improve the article, so it is worth acting on it where possible. Contrastingly, sometimes reviewers will reject an article because it goes against their views or agenda, which is why picking an appropriate journal is pivotal to getting an article published. I look forward to reading future RDAer authored articles.
Plans for future blog posts.
I have a few blog posts lined for the next coming months; such as further updates to the list the of published articles, in particular I have been informed to expect my article Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? Is shortly to be published in Autonomy, the Critical Journal of Interdisciplinary Autism Studies. I plan a future blog post exploring how parts of the RDA community are acting like cult.
Latest RDA Research.
I and others have a new article published Critical Autism Studies: a more Inclusive Interpretation, which can be viewed at the link below:
I have delivered 2 more talks on Rational Demand Avoidance at recent Participatory Autism Research Collective events:
- Rational Demand Avoidance: what it is not, what it could be & what it does.
- Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action.
https://www.researchgate.net/publication/326492264_Neurodiversity_Movement_and_Rational_Demand_Avoidance_The_clash_of_2_competing_biopower_technologies_in_action
These talks supplement the RDA deconstruction Critical Reflections on the Pathological Demand Avoidance debate: A response to The Practice MK blog and discussion, which can be accessed here:
https://rationaldemandavoidance.com/2018/05/15/critical-reflections-on-the-pathological-demand-avoidance-debate-a-response-to-the-practice-mk-blog-and-discussion/
Autism Policy and Practice Call for Papers.
The autistic-led (emancipatory) good practice journal Autism Policy and Practice has issued a call for papers available at the link below:
https://www.openaccessautism.org/index.php/app/announcement/view/3
Rational Demand Avoidance 