09TH OF DECEMBER 2018 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENON ARTICLES.

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09TH OF DECEMBER 2018 UPDATE TO THE LIST OF DEMAND AVOIDANCE PHENOMENON ARTICLES.

 

Introduction.

After collecting all the medical ontologies in the literature I am aware of, I have subsequently renamed it Demand Avoidance Phenomenon (DAP). There are numerous reasons for this, which I explain here:
https://www.researchgate.net/publication/329001126_An_Interest_Based_Account_Monotropism_theory_explanation_of_anxiety_in_Autism_a_Demand_Avoidance_Phenomenon_discussion

I am attempting to use DAP where possible in all my current work. Unfortunately it is not always possible for me to use DAP due to editorial preference.

 

This entry, repeats wider information published previously. There have been 10 new articles / reports to the published: 2 short letter articles responding to O’Nions et al (2018). Egan et al (2018) is the first step in adapting the screening EDA-Q for clinical use. Additionally, 3 other articles have been published by Pathological Demand Avoidance lobby to allow its’ wider use (Eaton et al  2018; Lyle & Leatherland 2018; Summerhill & Collett 2018).I have 3 more publications, 2 PDA book reviews and an encyclopaedia book chapter.

 

Updated List of DAP Articles.

DAP ARTICLES TIMELINE BY YEAR.
NUMBER YEAR AUTHOR TITLE: CAN BE SHORTENED. JOURNAL.
1 2003 Newson et al. Pathological demand avoidance syndrome: a necessary distinction within the PDD. Archives of Disease in Childhood.
2 2003 Garralda. Pathological demand avoidance syndrome or psychiatric disorder? Archives of Disease in Childhood.
3 2005 Jones. Developing independence through the use of a colour-coded system with PDA. Good Autism Practice.
4 2007 Christie. Pathological Demand Avoidance Syndrome: Guidelines for Good Practice Good Autism Practice.
5 2011 Gould & Ashton-Smith. Missed diagnosis or misdiagnosis? Girls and women on the autism spectrum. Good Autism Practice.
6 2011 Carlile. Helping your child with PDA to play: eight strategies for PDA. Good Autism Practice.
7 2012 Harvey The Educational Issues for the child with a diagnosis of Pathological Demand Avoidance Good Autism Practice.
8 2012 Eaton & Banting. Adult diagnosis of pathological demand avoidance – subsequent care planning Learning Disabilities Offending
9 2013 Milton. ‘Natures answer to over-conformity’: deconstructing PDA. Book chapter in 2017. Autism Experts.
10 2013 Sinson. Understanding pathological demand avoidance in children: Book review. Educational Psychology in Practice
11 2013 Grahame. Understanding pathological demand avoidance in children: Book review. Child Adolescent Ment Health
12 2014 Saunders. Understanding pathological demand avoidance in children: Book review. Int Journal of Primary Ed
13 2014 O’Nions et al. Development of the EDA-Q for PDA traits measurement. Child Psychology and Psychiatry.
14 2014 O’Nions et al. Pathological demand avoidance: Exploring the behavioural profile. Autism.
15 2014 Gillberg. Public display of affection or pathological demand avoidance? Child Psychology and Psychiatry.
16 2015 Gillberg et al. PDA: a general population study in the Faroe Islands Eur Child Adolescent Psychiatry.
17 2015 Reilly et al. PDA in a population cohort of children with epilepsy: Four case studies. Research in Dev Disabilities.
18 2016 O’Nions et al. Identifying PDA using the DISCO. Eur Child Adolescent Psychiatry.
19 2016 Langton & Frederickson Mapping the educational experiences of children with PDA. Journal of Research of SEN.
20 2016 Davis Can I tell you about PDA: Book review. Good Autism Practice.
21 2016 Langton and Frederickson Parents’ experiences of professionals’ involvement for children with PDA. International Journal Dev Dis.
22 2017 Trundle et al. Differentiating between PDA and antisocial personality disorder: a case study. Learning Disabilities Offending
23 2017 Woods. PDA: my thoughts on looping effects and commodification of autism. Disability and Society.
24 2017 O’Nions, Happe and Viding. Extreme/’pathological’ demand avoidance. BPS DECP Debate 160.
25 2017 Brede et al. Excluded from school: Autistic students exclusion and re-integration experiences. Autism & Dev Language Impairments.
26 2017 Flackhill et al. Coventry Grid Interview: Exploring autism and attachment difficulties. Good Autism Practice.
27 2018 O’Nions et al. PDA: Dimensions of difficulty in children with Autism + PDA Traits. Child and Adol Mental Health
28 2018 Ogundele Behavioural and emotional disorders:  brief overview for paediatricians World Journal Paediatricians.
29 2018 Philip & Contejean. The syndrome of pathological avoidance of requests: translated into English. Neuropsych Child & Adolescent
30 2018 Green et al. Pathological Demand Avoidance: symptoms but not a syndrome Lancet Child & Adol Health
31 2018 Russell. Being Misunderstood: Experiences of PDA Profile of ASD. Self Published: The PDA Society.
32 2018 O’Nions et al. Demand avoidance is not necessarily defiance. Lancet Child & Adol Health
33 2018 Green et al. Demand avoidance is not necessarily defiance – Author’s reply. Lancet Child & Adol Health
34 2018 Egan, Lineberg & O’Nions The Measurement of Adult Pathological Demand Avoidance Traits Journal Autism & Devel Disorders
35 2018 Malik & Baird. PDA – what’s in a name? Dimensions of difficulty, SD and features of EDA/ PDA. Child and Adol Mental Health
36 2018 Woods. Pathological Demand Avoidance (PDA): Book Chapter. Encyclopaedia of ASDs.
37 2018 O’Nions & Neons. Conceptualising demand avoidance in an ASD context – Author’s response. Child and Adol Mental Health
38 2018 Woods. PDA by PDAers, from anxiety to avoidance and masking to meltdowns: Book Review. Disability & Society.
39 2018 PDA Action. Failed by the System: EDA/ PDA in adults. Self Published: PDA Action.
40 2018 Eaton et al 2018. Modification of the Coventry Grid Interview  to include PDA. Good Autism Practice.
41 2018 Summerhill & Collett Multi-agency assessment pathway for children and young people thought to have a PDA. Good Autism Practice.
42 2018 Lyle & Leatherland Preventing school exclusion: a case study of an  autistic child with ADHD and a PDA profile. Good Autism Practice.
43 2018 Woods. A guide to mental health issues in girls and young women on the autism spectrum: Book Review. Good Autism Practice.

 

*The articles that have autistic authors are marked by using bold and italics.

 

Journals where DAPers can publish their own articles.

In order for DAPers to have their work published they must meet the aims & scopes of the journal, along with their work being to academic standard. The list of journals which provide spaces for autistic persons to get their voice into the academic literature are:

http://www.larry-arnold.net/Autonomy/index.php/autonomy/about/editorialPolicies#focusAndScope

 

General advise when writing an article and choosing an appropriate journal, is to be aware of the audience each journal has and the politics of the journal. Good Autism Practice appears to be an important outlet for DAP literature, which is reflected in it publishing 25.6% of DAP articles and readers are explicitly recommended to read it the key DAP text book (Christie et al 2012). This could be due to Good Autism Practice target audience being clinicians and parents; that are 2 stakeholder groups pushing the growth in DAP (Christie 2007; Christie et al 2012). Picking a suitable journal for your work is crucial step in the process of getting an article published, however it is hard work and the feedback that you will receive may appear harsh. Most reviewers’ feedback is there to improve the article, so it is worth acting on it where possible. Contrastingly, sometimes reviewers will reject an article because it goes against their views or agenda, which is why picking an appropriate journal is pivotal to getting an article published. I look forward to reading future DAPer authored articles.

 

Plans for future blog posts.

I have a few blog posts lined for the next coming months;  such as further updates to the list the of published articles, in particular I have been informed to expect my article Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? Is shortly to be published in Autonomy, the Critical Journal of Interdisciplinary Autism Studies. I plan a future blog post exploring how parts of the DAP community are acting like cult.

 

Latest DAP Research.

I and others have a new article published Critical Autism Studies: a more Inclusive Interpretation, which can be viewed at the link below:

I have delivered 3 talks on Rational Demand Avoidance at recent Participatory Autism Research Collective events:

  • Rational Demand Avoidance: what it is not, what it could be & what it does.

https://www.researchgate.net/publication/325181432_Demand_Avoidance_what_it_is_not_what_it_could_be_what_it_does

https://www.researchgate.net/publication/329001126_An_Interest_Based_Account_Monotropism_theory_explanation_of_anxiety_in_Autism_a_Demand_Avoidance_Phenomenon_discussion

Two of these talks supplement the DAP deconstruction Critical Reflections on the Pathological Demand Avoidance debate: A response to The Practice MK blog and discussion, which can be accessed here:
https://rationaldemandavoidance.com/2018/05/15/critical-reflections-on-the-pathological-demand-avoidance-debate-a-response-to-the-practice-mk-blog-and-discussion/

The third talk develops an interest based account of autism (monotropism theory) and highlights how it explains the DAP profile.

 

Autism Policy and Practice Autistic-led good practice journal.
Here is a link to an open access good practice journal that I and others are restarting:
https://www.openaccessautism.org/index.php/app/about/submissions#authorGuidelines

Published by Rational Demand Avoidance

Richard Woods is a leading author on Demand Avoidance Phenomena (Pathological Demand Avoidance) and an editor of the autistic-led good practice journal, Autism Policy and Practice. He completed his BSc Technological Physics at Nottingham Trent University (NTU) in 2016. After his diagnosis in 2012, he was pivotal to the running of the Autistic-led society at NTU until 2014. Since 2013, Mr Woods has been working in schools in his local area, undertaking roles such as a mentor. Currently, he is an independent scholar pursuing an Interest Based Account of autism (monotropism theory). Mr Woods’ is involved with Participatory Autism Research Collective. His research is situated in Critical Autism Studies discipline, challenging pathologising discourses. Specifically, his scholarship includes the key article “Redefining Critical Autism Studies: a more inclusive interpretation”. Presently, his research areas are deconstructing Demand Avoidance Phenomena to provide alternative explanations to its dominant discourse whilst advocating the inclusion of autistic persons’ perspectives in the autism literature. Recently, he has delivered training on DAP to postgraduate level and spoken internationally on the topic. When not advancing autistic persons’ rights, Mr Woods can be found immersing himself in cyber-goth style music and socialising with his friends. Ironically, he resides in Nottingham, the source of Rational Demand Avoidance. You can reach Mr Woods at richardwoodsautism@gmail.com and on twitter, @Richard_Autism. Editor: Autism Policy and Practice: https://www.openaccessautism.org/index.php/app/announcement/view/3 ORCiD: https://orcid.org/0000-0002-8292-632X Researchgate: https://www.researchgate.net/profile/Richard_Woods10 Google Scholar Citations: https://scholar.google.com/citations?user=uc1IjOUAAAAJ Blog, Rational Demand Avoidance: https://rationaldemandavoidance.com/ Twitter: twitter.com/Richard_Autism

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2 Comments

  1. Please explain?

    “I plan a future blog post exploring how parts of the DAP community are acting like cult.”

    Particularly the ‘cult’ bit?

    Thanks.

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    1. Hi Sarah. Thank you for the interest in the blog. I apologise, I am not sure there is anything to explain as it will be made clear in the blog posts. Unfortunately due to current circumstances, it will likely have to wait until early 2019 for me to publish them. The DAP community acting as a cult blog has has been started, but I need a spare day or 2 to complete. I hope you find the list of published articles useful.

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